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We hope you find these resources useful.

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Patient Stories
Pam's story
Tom's story
India's story
Jane's story (Northern Ireland)
Kirsten's story
Eric's story
Patient safety card
Living with PNH
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Travelling with PNH
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Videos and Webinars
PNH National Service
EuroBloodNet
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Upcoming Events

Dec 7

11:00 am - 12:30 pm

London PNH Patient & Family Meeting – Saturday 7 December 2024

Dec 7

12:30 pm - 2:30 pm

East Anglia Patient and Family Christmas Lunch – 7 December 2024

Mar 15

10:30 am - 12:00 pm

East Anglia Patient and Family Meeting – 15 March 2025

May 17

10:30 am - 12:00 pm

PNH Patient/Family Online Meeting – Saturday 17 May 2025

Recent Posts

Are you a young person living with PNH?
Global PNH Awareness Day 2024
Launch of our 2024 Super Rare Campaign
Read the Rare Voices Report!
Small Charities Week!

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