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Our Events

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  • May 2022
  • Sat 21
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    May 21, 2022 @ 10:30 am - 12:30 pm

    East Anglia Patient and Family Coffee and Cake meeting

    Bury Lane Farm Shop Café A10 By Pass, Melbourn, Royston, Herts, SG8 6DF, United Kingdom

    An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome. We have booked outside seating, so fingers […]

  • June 2022
  • Sat 18
    people at table
    June 18, 2022 @ 10:00 am - 12:30 pm

    PNH Support Members’ Annual General Meeting – 18 June 2022 – 10am to 12.30pm

    Members of PNH Support are welcome to join our AGM to be held virtually on Zoom on 18 June 2022 and vote on the annual report and accounts and any other […]

  • July 2022
  • Sat 2
    July 2, 2022 @ 12:00 pm - 2:30 pm

    East Anglia PNH Support Group Summer Meal – Saturday 2 July 2022 at 12pm

    The East Anglia PNH Support patient group is having an informal pub garden lunch on Saturday 2 July at 12pm. This is a chance for patients and their families to […]

  • Tue 5
    July 5, 2022 @ 4:00 pm - 5:00 pm

    ERN-EuroBloodNet Webinars for Patients: Risk and Course of COVID-19 in AA/ PNH Patients, Including Vaccination Strategies

    The European Reference Network, EuroBloodNet has organised a patient webinar: Risk and Course of COVID-19 in AA and/or PNH Patients, including vaccination strategies. The webinar aims to provide highly specialised and […]

  • September 2022
  • Thu 8
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    September 8, 2022 @ 6:00 pm - 7:00 pm

    Sepsis Awareness Webinar hosted by the Aplastic Anaemia Trust – 8 September – 6pm to 7pm

      Sepsis is a serious condition, and can be life-threatening if left untreated. For people with aplastic anaemia and other rare bone marrow failures, the disease itself, and the impact […]

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