Name: PNH Patient Virtual Meeting: Saturday 5 November 2022 – 10am to 11.30am
Start: 2022-11-05T10:00:00+00:00
End: 2022-11-05T11:30:00+00:00

July 2022
July 2, 2022 @ 12:00 pm - 2:30 pm

East Anglia PNH Support Group Summer Meal – Saturday 2 July 2022 at 12pm

The East Anglia PNH Support patient group is having an informal pub garden lunch on Saturday 2 July at 12pm. This is a chance for patients and their families to […]
July 5, 2022 @ 4:00 pm - 5:00 pm

ERN-EuroBloodNet Webinars for Patients: Risk and Course of COVID-19 in AA/ PNH Patients, Including Vaccination Strategies

The European Reference Network, EuroBloodNet has organised a patient webinar: Risk and Course of COVID-19 in AA and/or PNH Patients, including vaccination strategies. The webinar aims to provide highly specialised and […]
September 2022
September 8, 2022 @ 6:00 pm - 7:00 pm

Sepsis Awareness Webinar hosted by the Aplastic Anaemia Trust – 8 September – 6pm to 7pm

Sepsis is a serious condition, and can be life-threatening if left untreated. For people with aplastic anaemia and other rare bone marrow failures, the disease itself, and the impact […]
September 17, 2022 @ 10:30 am - 12:00 pm

East Anglia Patient and Family Coffee and Cake Meeting – Saturday 17 September 2022

Bury Lane Farm Shop Café A10 By Pass, Melbourn, Royston, Herts, SG8 6DF, United Kingdom

An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome. We have booked outside seating, so fingers […]
November 2022
November 5, 2022 @ 10:00 am - 11:30 am

PNH Patient Virtual Meeting: Saturday 5 November 2022 – 10am to 11.30am

PNH Support, PNH Scotland and the PNH National Service invite you to join us on Saturday 5 November 2022, 10am to 11.30am via Zoom Agenda: 10am - PNH and meningitis […]