Name: East Anglia PNH Patient and Family Zoom meeting – Saturday 17 December 2022
Start: 2022-12-17T10:30:00+00:00
End: 2022-12-17T12:00:00+00:00

September 2022
September 8, 2022 @ 6:00 pm - 7:00 pm

Sepsis Awareness Webinar hosted by the Aplastic Anaemia Trust – 8 September – 6pm to 7pm

Sepsis is a serious condition, and can be life-threatening if left untreated. For people with aplastic anaemia and other rare bone marrow failures, the disease itself, and the impact […]
September 17, 2022 @ 10:30 am - 12:00 pm

East Anglia Patient and Family Coffee and Cake Meeting – Saturday 17 September 2022

Bury Lane Farm Shop Café A10 By Pass, Melbourn, Royston, Herts, SG8 6DF, United Kingdom

An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome. We have booked outside seating, so fingers […]
November 2022
November 5, 2022 @ 10:00 am - 11:30 am

PNH Patient Virtual Meeting: Saturday 5 November 2022 – 10am to 11.30am

PNH Support, PNH Scotland and the PNH National Service invite you to join us on Saturday 5 November 2022, 10am to 11.30am via Zoom Agenda: 10am - PNH and meningitis […]
December 2022
December 14, 2022 @ 4:30 pm - 6:00 pm

“Understanding PNH” Webinar – 14th December 2022 – 4.30 pm to 6 pm (GMT)

The European Reference Network (ERN) -EuroBloodNet Topic on Focus on aplastic anaemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patient associations: PNH Support (focused […]

Free
December 17, 2022 @ 10:30 am - 12:00 pm

East Anglia PNH Patient and Family Zoom meeting – Saturday 17 December 2022

Join PNH patients and family members online for an informal chat. All welcome! BYO refreshments. Date and Time: 10.30am to 12.00pm on Saturday 17th December 2022 Location: Zoom. Please email […]