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“Life after BMT for Aplastic Anaemia and PNH” Webinar – 31 May 2023 – 4.30 pm to 6 pm (GMT)
The European Reference Network (ERN) -EuroBloodNet Topic on Focus on aplastic anaemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patient associations: PNH Support (focused […]
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Webinar on Benefits – Thursday 22 June 2023 – 5.30pm to 6.30pm
If you're living with aplastic anaemia or another related condition (including PNH) and being supported by either of the charities listed below, whether you have it yourself or you're supporting […]
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Mindfulness Course – 8 weeks from Wednesday 28 June – 7pm to 9pm
As part of the Better Together project (in which PNH Support is a partner), patients and family members are invited to take part in a free 8 week mindfulness course […]
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Save the date – PNH Support Annual General Meeting – 1 July 2023
The Annual General Meeting for PNH Support which is eligible to be attended by members of PNH Support will be held via Zoom on Saturday 1 July 2023 at 10am […]
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“Managing your Sleep Webinar” on Thursday 27 July
Managing your Sleep Webinar We all experience difficulties with sleep from time to time, but when you are living with aplastic anaemia and other rare bone marrow failures (including PNH), […]
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