Name: Webinar on Wellbeing for Carers – 11 April – 5pm to 6pm
Start: 2024-04-11T17:00:00+01:00
End: 2024-04-11T18:00:00+01:00

February 2024
February 27, 2024 @ 7:00 pm - 8:30 pm

Mindfulness Online Course starting 27 Feb – 7pm to 8.30pm

It sounds so simple… just press the pause button then calmly decide how to respond in a measured way to the problem, what to do, what to say, how to […]
February 29, 2024 @ 1:00 pm - 1:45 pm

Update on PNH – Rare Disease Day – Thursday 29 February 2024 -1pm to 1.45pm

Join PNH Support and the PNH National Service for an update on PNH from the PNH National Service to celebrate Rare Disease Day 2024 from 1pm to 1.45pm via Zoom. […]
March 2024
March 9, 2024 @ 10:30 am - 12:00 pm

East Anglia Face-to- Face Patient and Family Meeting – 9 March 2024

An informal get together for PNH patients and their families to share their experiences of living with PNH. New members are always welcome. We have booked outside seating, so fingers […]
March 31, 2024 @ 8:00 am - 5:00 pm

Super Rare Campaign 2024 -1 February to 31 March 2024

Welcome to Super Rare! Super Rare is all about being rare, but not alone. Our charities designed this campaign together to help people affected by Super Rare conditions to come […]
April 2024
April 11, 2024 @ 5:00 pm - 6:00 pm

Webinar on Wellbeing for Carers – 11 April – 5pm to 6pm

A challenge faced by many who care for someone living with PNH, is taking time to care for themselves. This webinar offers parents and carers, (who often do not take […]