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Our Events

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  • November 2024
  • Mon 4
    November 4, 2024 @ 12:00 pm - 1:30 pm

    Moving Forward – Living the Life that Matters to you – Online Course – from 4 November

    If you're living with PNH or you're supporting a close family member, it can be challenging to think about how to move forward following significant treatment, or when treatment is […]

  • Sat 9
    November 9, 2024 @ 10:30 am - 12:00 pm

    PNH Patient/Family online meeting – 9 November 2024

    Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! […]

  • December 2024
  • Sat 7
    December 7, 2024 @ 11:00 am - 12:30 pm

    London PNH Patient & Family Meeting – Saturday 7 December 2024

    Join other PNH patients and family members face-to-face at an informal meeting over coffee.Where: Atrium Cafe (ground floor), National Theatre, London, SE1 9PX. For more information on getting here, please […]

  • Sat 7
    December 7, 2024 @ 12:30 pm - 2:30 pm

    East Anglia Patient and Family Christmas Lunch – 7 December 2024

    Join PNH patients and family members for a relaxed Christmas lunch. Cost and venue to be confirmed.

  • January 2025
  • Thu 16
    January 16, 2025 @ 6:30 pm - 8:30 pm

    Mindfulness for Stress Taster Session – 16 January 2025 – 6.30pm to 8.30pm

    Join experienced and accredited mindfulness teacher Steve Smith in this one-off taster session to learn a little more about what mindfulness is and how it can help you. We can’t […]

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