Our Events

If you're living with PNH or you're supporting a close family member, it can be challenging to think about how to move forward following significant treatment, or when treatment is life-long. Co-created by members of the 6 charities listed below, this online course is designed to help you move beyond diagnosis and treatment, and into […]

Join other PNH patients/ family members for an informal chat via Zoom. Please note that no medical advice will be provided but signposting can be provided if needed. All welcome! Date: Saturday 9 November 2024 Time: 10.30am to 12pm Please email contact@pnhuk.org for the Zoom details. Please also let us know if you need help […]