Our Events

The Rare Voices report (launched on 14 November 2023) sets out the findings from the first ever national community survey into rare bone marrow conditions.  This survey was a collaborative effort between the following charities: PNH Support The Aplastic Anaemia Trust Fanconi Hope (Fanconi Anaemia) DC Action (Dyskeratosis Congenita and Telomere Biology Disorders) SDS UK (Schwachman […]

Benefit Advisor, Robert Mandlestam is delivering this webinar to bring you information about the benefits you may be entitled to if you or someone you support has PNH, and advise about how to apply for them. This webinar will include the following: -Universal Credit -Personal Independence Payment -Carers Allowance -Employment and Support Allowance -Local support […]

Join this webinar with clinical psychologist, Lesley Howells, to learn everyday mindfulness strategies to quieten the busyness of our minds and help us live a more meaningful life despite the challenges we face. This webinar is also a taster for the eight week Mindfulness Courses that the Better Together project run for the communities of […]

Managing Stress and Uncertainty Course with Catarina Baptista The dates of this previously advertised course have now shifted by one day each. It now starts on Thursday 25 January and finishes on Thursday 29 February. Apologies for any inconvenience caused. Those who have already registered have been notified directly. This 6 week online course will […]

It sounds so simple… just press the pause button then calmly decide how to respond in a measured way to the problem, what to do, what to say, how to say it. Even when we feel overwhelmed, Mindfulness can helps us create clarifying and compassionate pauses for our minds to settle. Join this eight week […]