Our Events

The Annual General Meeting for PNH Support which is eligible to be attended by members of PNH Support will be held via Zoom on Saturday 1 July 2023 at 10am to 12pm. If you are a member of PNH Support you will sent the papers for the meeting by email or post (if you don't […]

Managing your Sleep Webinar We all experience difficulties with sleep from time to time, but when you are living with aplastic anaemia and other rare bone marrow failures (including PNH), sleep issues can become even more challenging. Join the webinar hosted by the Aplastic Anaemia Trust and delivered by Psychologist Catarina Baptista, to offer you […]

One of our members (Victoria) has offered to host a London face-to-face patient meeting on Saturday 2 September 2023 from 11am at the Hayward Gallery cafe located on the first floor of the Hayward Gallery building in central London. It is a few minutes walk from Waterloo station and is well connected by buses. The […]

This 12 week course will help you learn techniques to help you face the challenges of living with PNH. There are six weeks of learning sessions, interspersed with six weeks of supported sessions where you are encouraged to try out the techniques you have learned in your day-to-day life. Topics include understanding stress and uncertainty, […]

Join patients and family members for a face-to-face get together at Bents Garden Centre Warrington Road, Glazebury, Warrington, Cheshire, WA3 5NT on Saturday 23 September 2023 at 11am. Sue and Colin Coles will be at the entrance to direct you to the right coffee place if needed. Partners, carers or family welcome too.