Our Events

One of our members (Victoria) has offered to host a London face-to-face patient and family meeting on Saturday 2 December 2023 from 11am at the Hayward Gallery cafe located on […]

The Rare Voices report (launched on 14 November 2023) sets out the findings from the first ever national community survey into rare bone marrow conditions.  This survey was a collaborative effort […]

Benefit Advisor, Robert Mandlestam is delivering this webinar to bring you information about the benefits you may be entitled to if you or someone you support has PNH, and advise […]

Join this webinar with clinical psychologist, Lesley Howells, to learn everyday mindfulness strategies to quieten the busyness of our minds and help us live a more meaningful life despite the […]

Managing Stress and Uncertainty Course with Catarina Baptista The dates of this previously advertised course have now shifted by one day each. It now starts on Thursday 25 January and […]