Name: MEETING – London Patient and Family Face-to-Face meeting
Start: 2025-09-13T11:00:00+01:00
End: 2025-09-13T12:30:00+01:00
Location: The Atrium Café

June 2025
June 12, 2025 @ 12:00 pm - 1:00 pm

What about the rest of my family – how do I support them?

Themes in this webinar will include: How do I build family resilience? How do I deal with challenging behaviour in my other children? For example, jealousy, sleep problems, school refusal. […]
July 2025
July 7, 2025 @ 8:00 am - August 18, 2025 @ 5:00 pm

COURSE – Moving Forward, Living the life that matters to you

Living the life that matters to us is key to everyone's emotional wellbeing. But following significant treatment or when treatment is life long, this isn't always easy. People are faced […]
August 2025
August 14, 2025 @ 6:30 pm - August 28, 2025 @ 8:00 pm

COURSE (short) – Managing Stress and Uncertainty with Maria Mullan

This shortened course will help you learn techniques to help you face the challenges of living with bone marrow failure. There are three weekly sessions each with 60 minutes of […]
September 2025
September 6, 2025 @ 10:30 am - 12:00 pm

MEETING: East Anglia Group Patient and Family Face-to-Face Meeting

Bury Lane Farm Shop Café A10 By Pass, Melbourn, Royston, Herts, SG8 6DF, United Kingdom

Join PNH patients and family members for an informal chat over coffee and cake. Please note that you will need to pay for your own refreshments. Please contact contact@pnhuk.org if […]
September 13, 2025 @ 11:00 am - 12:30 pm

MEETING – London Patient and Family Face-to-Face meeting

The Atrium Café National Theatre, London

This is an informal Saturday morning catch-up for all members of our PNH community. Newcomers and regulars are most welcome. The venue information can be found here. Please email contact@pnhuk.org with any questions.