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This suite of webinars is designed to help parents/carers and grandparents to manage family dilemmas triggered by bone marrow conditions include PNH. Content will cover a variety of areas from finding the right words to talk with your child about their diagnosis, to looking after your own emotional wellbeing,...and much much more! 'How do I […] |
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Now that there are PNH treatments available which are in tablet form (danicopan and iptacopan), join us to hear some advice and tips about taking tablets regularly from a patient as well as the PNH National Service who can answer any questions relating to PNH tablet treatment 10am - 10.45am - presentation 10.45am to 11.00am […] |
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Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional burden of living with these conditions. This course will help you learn techniques to help you face the challenges of living with bone marrow […] |
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Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional burden of living with these conditions. We can’t always choose what happens to us in life, but we can pause to choose how we wish […] |
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Join a coffee and cake morning with a variety of stalls including a tombola - cash only! Raising money for PNH Support and the Aplastic Anaemia Trust. Venue: St James' Church, 74D Coventry St, Southam CV47 0EA Time: 10.30am to 1pm https://stjames-southam.co.uk/ |
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This webinar on 20 February 2025 from 12pm to 1pm is designed to help you find the confidence to advocate for yourself or your loved one, and the words when you need them. We will discuss strategies that help you relax in conversations or email interactions, pausing to get across what you wish to say […] |
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Our charity partners The Aplastic Anaemia Trust are hosting a webinar and you are invited to join. This webinar focused on living well with Aplastic Anaemia. This session will offer practical strategies for cultivating resilience and well-being while navigating the emotional and psychological challenges of an Aplastic Anaemia diagnosis. Sign up here. |
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How do I manage times of change in my child’s life? This webinar will help you and your child cope with the practical and emotional demands of life transition and find balance between keeping your child safe and helping them become more independent. https://www.theaat.org.uk/Event/webinar-how-do-i-manage-times-of-change-in-my-childs-life inar-how-do-i-manage-times-of-change-in-my-childs-life |
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On Saturday 1 March 2025, we will be coming together to walk in Epping Forest in support of the Super Rare campaign and PNH Support. This year is the 10 year anniversary of PNH Support which is run voluntarily by patients, for patients! We'll walk to High Beach in Epping Forest for lunch where you […] |
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