Our Events

Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional burden of living with these conditions. This shortened course will help you learn techniques to help you face the challenges of living with bone marrow […]

Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this webinar is designed to help you to deal with the financial burden of living with a rare condition. Benefits Advisor, Robert Mandlestam will deliver this webinar to bring you information about the benefits you may be […]

This suite of webinars is designed to help parents/carers and grandparents to manage family dilemmas triggered by bone marrow conditions include PNH. Content will cover a variety of areas from finding the right words to talk with your child about their diagnosis, to looking after your own emotional wellbeing,...and much much more! 'How do I […]

Now that there are PNH treatments available which are in tablet form (danicopan and iptacopan), join us to hear some advice and tips about taking tablets regularly from a patient as well as the PNH National Service who can answer any questions relating to PNH tablet treatment 10am - 10.45am - presentation 10.45am  to 11.00am […]

Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional burden of living with these conditions.   This course will help you learn techniques to help you face the challenges of living with bone marrow […]