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The European Reference Network (ERN) -EuroBloodNet Topic on Focus on aplastic anaemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) for patients and their families is coordinated in collaboration with the following patient associations: PNH Support (focused on PNH represented by Maria Piggin, ePAG of the ERN-EuroBloodNet) and Lichterzellen (focused on AA and PNH and represented by Pascale Olivia Burmester) and Eurordis. It aims to […]
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If you're living with aplastic anaemia or another related condition (including PNH) and being supported by either of the charities listed below, whether you have it yourself or you're supporting a close family member, you may have experienced difficulty in navigating the complex benefits system. This webinar is designed to help you understand the benefits […]
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As part of the Better Together project (in which PNH Support is a partner), patients and family members are invited to take part in a free 8 week mindfulness course delivered by Lesley Howells, Maggie’s Lead Consultant Clinical Psychologist for Scotland. Mindfulness can help us even when we feel overwhelmed, it helps us create clarifying and […]
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The Annual General Meeting for PNH Support which is eligible to be attended by members of PNH Support will be held via Zoom on Saturday 1 July 2023 at 10am to 12pm. If you are a member of PNH Support you will sent the papers for the meeting by email or post (if you don't […] |
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