Our Events

One of our members (Victoria) has offered to host a London face-to-face patient meeting on Saturday 2 September 2023 from 11am at the Hayward Gallery cafe located on the first floor of the Hayward Gallery building in central London. It is a few minutes walk from Waterloo station and is well connected by buses. The […]

This 12 week course will help you learn techniques to help you face the challenges of living with PNH. There are six weeks of learning sessions, interspersed with six weeks of supported sessions where you are encouraged to try out the techniques you have learned in your day-to-day life. Topics include understanding stress and uncertainty, […]

Join patients and family members for a face-to-face get together at Bents Garden Centre Warrington Road, Glazebury, Warrington, Cheshire, WA3 5NT on Saturday 23 September 2023 at 11am. Sue and Colin Coles will be at the entrance to direct you to the right coffee place if needed. Partners, carers or family welcome too.

If you're living with a condition and being supported by any of the charities listed below, whether you have it yourself or you're supporting a close family member, you will likely be dealing with a lot of stress and uncertainty. Brought to you as part of the Better Together Alliance Project, this course is designed to help you to deal with […]

Register for a webinar on"Everyday Mindfulness" on Thursday 16th November, 17.30 - 18.30 delivered by Lesley Howells, Clinical Psychologist. Every day mindfulness strategies to quieten the busyness of our minds and help us live a more meaningful life despite the challenges we face. This webinar is also a taster for the eight week Mindfulness Courses […]