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  • January 2025
  • Thu 16
    January 16, 2025 @ 6:30 pm - 8:30 pm

    Moving Forward, Living the Life that Matters to You – 8 Week Online Course – starts 16 Jan 2025

    Co-created by members of the 6 Better Together charities including PNH Support, this course is designed to help you move beyond diagnosis and treatment, and into the life that matters […]

  • Mon 20
    January 20, 2025 @ 12:00 pm - 1:30 pm

    Managing Stress and Uncertainty Short Online 3 Week Course – starts 20 Jan 2025 – 12pm to 1.30pm

    Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this course is designed to help you to deal with the emotional […]

  • Thu 23
    January 23, 2025 @ 6:00 pm - 7:00 pm

    Benefits Webinar – 23 January 2025 – 6pm to 7pm

    Brought to you as part of the Better Together Alliance Project (of which PNH Support is a member), this webinar is designed to help you to deal with the financial […]

  • Thu 30
    January 30, 2025 @ 12:00 pm - 1:00 pm

    Parent and Carer Webinars

    This suite of webinars is designed to help parents/carers and grandparents to manage family dilemmas triggered by bone marrow conditions include PNH. Content will cover a variety of areas from […]

  • February 2025
  • Sat 8
    February 8, 2025 @ 10:00 am - 11:30 am

    Taking Tablets Webinar – 8 February 2025 – 10am to 11.30am

    Now that there are PNH treatments available which are in tablet form (danicopan and iptacopan), join us to hear some advice and tips about taking tablets regularly from a patient […]

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