Our Events

Sick of always having to explain your condition? Join others living with rare haematological conditions from our "Better Together" project partner charities (listed below) for a cuppa on Saturday 12th October in Edinburgh, London, Birmingham or Leeds and chat with other people affected by rare conditions affecting the blood. Venues: London -Basement Bar, Drake and […]

A fellow PNH patient and PNH Support UK member is hosting an informal meet up for younger PNH patients (approx 18 to approx 30 years)! Date: Saturday, 26th of October 2024Time: 4-6 pm.Venue: National Theatre Cafe (Ground floor) on the South Bank in London, SE1 9PX - nearest station is Waterloo (train and tube) - […]