Are you a young person living with PNH?
If you’re a young person in the UK navigating life with PNH, a fellow PNH patient, has set up a special WhatsApp group just for you! 🎉 This group brings together teens through early 30s, creating a supportive space to connect with others who truly understand what it’s like to live with PNH.
What you’ll find in the group:
✨ A relaxed, no-pressure environment – think of it as chatting with friends who share a rare experience. ✨ Information on face-to-face PNH meetups – we hold gatherings every 2 months where young people affected by PNH can connect in person!
Whether you’re working, studying, or simply finding your way with PNH, this group offers support, friendship, and advice from people who genuinely get it.
Join us – you might find it’s exactly what you’ve been looking for! ❤️
For more information about how to join the WhatsApp group please email Virginia@pnhuk.org.