PNH Support
  • Home (current)
  • About
    About PNH Support Membership Funding Contact us
  • What is PNH?
    What is PNH? Signs and Symptoms Diagnosis Current Treatments Pregnancy And Fertility Research and Clinical Trials
  • News (current)
  • Membership (current)
  • Events (current)
  • Resources
    Living with PNH Travelling with PNH Glossary Videos and Webinars PNH National Service EuroBloodNet
  • Covid-19 (current)
  • Donate Now (current)

Archives By Month: September 2022

7 people with arms around each other

Introducing: The Better Together For Healthy Bone Marrow Project

Posted on September 6, 2022

We are delighted to announce that our alliance of seven charities have secured support from The National Lottery Community Fund to build an ambitious three year project. This project is […]

Read more About Introducing: The Better Together For Healthy Bone Marrow Project

Upcoming Events

Feb 8
4:30 pm - 6:00 pm

“Treatment of PNH” Webinar – 8th February 2023 – 4.30 pm to 6 pm (GMT)

Mar 18
10:00 am - 5:30 pm

PNH Patient and Family Conference – Saturday 18 March 2023

Mar 22
4:30 pm - 6:00 pm

“Connection between Aplastic Anaemia and PNH” Webinar – 22nd March 2023  – 4.30 pm to 6 pm (GMT)

Apr 19
4:30 pm - 6:30 pm

“What effect does Aplastic Anaemia and PNH have on my life?” Webinar – 19th April 2023 – 4.30 pm to 6 pm (GMT)

Apr 22
10:30 am - 12:00 pm

East Anglia PNH Patient and Family meeting – Saturday 22 April 2023

View Calendar
Recent Posts
  • Launch of Super Rare Campaign – February and March 2023
  • National Community Survey of people living in the UK with bone marrow conditions
  • Introducing: The Better Together For Healthy Bone Marrow Project
  • “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” Webinar Recording
  • Commentary piece published on Biosimilar drugs in HemaSphere journal by Chair of PNH Support
Archives
  • January 2023
  • November 2022
  • September 2022
  • August 2022
  • April 2022
  • March 2022
  • February 2022
  • July 2021
  • April 2021
  • July 2020
  • June 2019
  • April 2019
  • February 2019
  • January 2019
  • December 2018
  • October 2018
  • August 2018
  • July 2018
  • May 2018
  • February 2018
  • November 2017
  • May 2017
  • March 2017
  • November 2016
  • April 2016
  • September 2015

Latest Tweets

  • RT @roethal: Just out: Biomarkers and laboratory assessments for monitoring the treatment of patients with paroxysmal nocturnal hemoglobinuria (#PNH): Differences between terminal and proximal complement inhibition: https://t.co/oy6tKaYvI9, January 23, 2023
  • Raise £200 for PNH Support in February and March and earn yourself a Super Rare t-shirt. The money you raise will help us support people affected by #PNH Sign up today! https://t.co/cXFttN0wph #superrare2023 #strongertogether #bettertogether #charityfundraiser #raredisease https://t.co/uSz1FNosql, January 22, 2023

Quick Links

  • About PNH Support
  • Membership
  • Resources
  • Covid-19

Legal

  • Disclaimer
  • Legal

Copyright ©

PNH SUPPORT