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Archives By Month: August 2022

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“Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” Webinar Recording

Posted on August 13, 2022

For those who missed the EuroBloodNet webinar held on 5 July 2022 on “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” the recording is now […]

Read more About “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” Webinar Recording

Upcoming Events

Feb 8
4:30 pm - 6:00 pm

“Treatment of PNH” Webinar – 8th February 2023 – 4.30 pm to 6 pm (GMT)

Mar 18
10:00 am - 5:30 pm

PNH Patient and Family Conference – Saturday 18 March 2023

Mar 22
4:30 pm - 6:00 pm

“Connection between Aplastic Anaemia and PNH” Webinar – 22nd March 2023  – 4.30 pm to 6 pm (GMT)

Apr 19
4:30 pm - 6:30 pm

“What effect does Aplastic Anaemia and PNH have on my life?” Webinar – 19th April 2023 – 4.30 pm to 6 pm (GMT)

Apr 22
10:30 am - 12:00 pm

East Anglia PNH Patient and Family meeting – Saturday 22 April 2023

View Calendar
Recent Posts
  • Launch of Super Rare Campaign – February and March 2023
  • National Community Survey of people living in the UK with bone marrow conditions
  • Introducing: The Better Together For Healthy Bone Marrow Project
  • “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” Webinar Recording
  • Commentary piece published on Biosimilar drugs in HemaSphere journal by Chair of PNH Support
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Latest Tweets

  • RT @roethal: Just out: Biomarkers and laboratory assessments for monitoring the treatment of patients with paroxysmal nocturnal hemoglobinuria (#PNH): Differences between terminal and proximal complement inhibition: https://t.co/oy6tKaYvI9, January 23, 2023
  • Raise £200 for PNH Support in February and March and earn yourself a Super Rare t-shirt. The money you raise will help us support people affected by #PNH Sign up today! https://t.co/cXFttN0wph #superrare2023 #strongertogether #bettertogether #charityfundraiser #raredisease https://t.co/uSz1FNosql, January 22, 2023

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