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Archives By Month: January 2023

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Launch of Super Rare Campaign – February and March 2023

Posted on January 10, 2023

People living with PNH need our help more than ever. With increasing pressures in our health service, and a cost of living crisis – it is too easy for the […]

Read more About Launch of Super Rare Campaign – February and March 2023

Upcoming Events

May 31
4:30 pm - 6:00 pm

“Life after BMT for Aplastic Anaemia and PNH” Webinar – 31 May 2023 – 4.30 pm to 6 pm (GMT)

Jun 28
4:30 pm - 6:00 pm

“Psychological impact and well-being in Aplastic Anaemia and PNH” Webinar – 28 June 2023 – 4.30 pm to 6 pm (GMT)

Jul 1
10:00 am - 12:00 pm

Save the date – PNH Support Annual General Meeting – 1 July 2023

View Calendar
Recent Posts
  • PNH features in Lancet Haematology
  • Launch of Super Rare Campaign – February and March 2023
  • National Community Survey of people living in the UK with bone marrow conditions
  • Introducing: The Better Together For Healthy Bone Marrow Project
  • “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” Webinar Recording
Archives
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Latest Tweets

  • RT @GlobalPnh: Day 2 of the #IPIG conference in Harrogate @marrow raising topical issues including whether new treatments are necessarily better & the importance of patient outcomes and experience among all the new developments #nothingaboutuswithoutus https://t.co/CEg9BRMd9H, May 19, 2023
  • RT @GlobalPnh: Prof. Risitano opening the International #PNH Interest Group conference starting with the history of PNH. #nothingaboutuswithoutus https://t.co/LRYqSya6Sv, May 18, 2023

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