Archives By Month: February 2019

PNH Support features in Rare Revolution Blog

Posted on February 21, 2019

Maria Piggin talks to Rare Revolution about PNH and PNH Support, a community of people living with PNH (and their family members) in England, Wales and Northern Ireland.

Check out Suzie’s Story about Life with PNH

Posted on February 6, 2019

See the latest edition of Rare Revolution magazine for Suzie’s story about life with PNH (page 28). https://edition.pagesuite-professional.co.uk/html5/reader/production/default.aspx?pubname=&edid=5e15642b-f320-410c-afd5-200f9f8f7b1e