Join in with Super Rare 2025!
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Join in with Super Rare our annual fundraising campaign and celebrate Rare Disease Day (28.02.25)!
Support PNH Support during February and March 2025 and help bring people affected by PNH together during our 10th anniversary year.
Raise £200 we’ll send you a Super Rare t-shirt.
Are you a Parent, Carer or Teacher of a child with PNH?
Download the schools pack now for information on how to support a child with PNH and ideas on how your school can join in with Super Rare 2025! For more information see here
For more information or to register your fundraising event/activity see here