Our community survey is now live!
Our community survey is now live!
Please take 15 minutes when you can and complete it here before 5pm on Wednesday 16th April.
Take the Survey: https://www.surveymonkey.com/r/BetterTogether2025
This survey is for anyone living with PNH (or a similar / related condition) or who is caring for or supporting someone with the condition.
Why fill in the survey?
✔ It helps us to show funders like The National Lottery that we’re reaching people with (condition) -which could help us raise and deliver more in the future
✔ It helps us understand who is finding and using our services
✔It helps us collect feedback and suggestions from you to help us improve our work.
Completing the survey is a great way to support our work for free! So if you can spare 15 minutes, please do this now.
The more responses, the more useful the survey will be – so please share it widely with your family and contacts!