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Research from PNH Registry

PNH Support/Research from PNH Registry
  • Long-term Survival Benefit of Eculizumab Treatment in Patients With Paroxysmal Nocturnal Haemoglobinuria: Data From the International PNH Registry (2022)
  • Different clinical characteristics of paroxysmal nocturnal hemoglobinuria in pediatric and adult patients (2016)
  • Baseline characteristics and disease burden in patients in the International Paroxysmal Nocturnal Hemoglobinuria Registry (2014)
  • Use of Blood Transfusions In Paroxysmal Nocturnal Hemoglobinuria Patients with and without Aplastic Anemia Enrolled In the Global PNH Registry (2010)
  • Use of Blood Transfusions In Paroxysmal Nocturnal Hemoglobinuria Patients with and without Aplastic Anemia Enrolled In the Global PNH Registry (2010)

Upcoming Events

Dec 2
10:30 am - 12:00 pm

East Anglia Online Patient and Family Meeting

Dec 2
11:00 am - 1:00 pm

Face-to-face London Patient & Family Meeting – Saturday 2 December 2023

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Recent Posts
  • Small Charities Week!
  • PNH features in Lancet Haematology
  • Launch of Super Rare Campaign – February and March 2023
  • National Community Survey of people living in the UK with bone marrow conditions
  • Introducing: The Better Together For Healthy Bone Marrow Project
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