We are delighted that NICE recommended Ravulizumab “as an option for treating paroxysmal nocturnal haemoglobinuria in adults: • with haemolysis with clinical symptoms suggesting high disease activity, or • whose […]
Read more About NICE Recommends Ravulizumab for treating PNH in Adults
The PNH Global Alliance is pleased to present their new website! The PNH Global Alliance was formed in December 2018 and comprises PNH patient organisations from the following countries: Germany, […]
Read more About New website for the PNH Global Alliance!
Dear PNH community living in the UK, We need your help! As some of you may be aware, the National Institute for Health and Care Excellence (NICE) is currently appraising […]
Read more About Survey for PNH Patients and Carers/Family Members for NICE Appraisal – closes 21 August 2020
A group of rare disease charities specialising in acquired and inherited rare bone marrow failures have come together to form a collaborative alliance – Together for Heathy Marrow. The charities […]
Read more About PNH Support joins Alliance with UK Bone Marrow Failure Patient Organisationsby Dan StantonThursday, April 11, 2019 12:04 pm Russian biopharma Generium has launched Elizaria, a biosimilar version of Alexion’s Soliris (eculizumab) developed using the SUREtechnology Platform from Selexis. Approved for the treatment of […]
Read more About World’s first Soliris biosimilar launched in Russia