PNH Support
  • Home (current)
  • About
    About PNH Support Membership Funding Contact us
  • What is PNH?
    What is PNH? Signs and Symptoms Newly Diagnosed Information Diagnosis Current Treatments Pregnancy, Fertility & Menopause Research and Clinical Trials
  • News (current)
  • Membership (current)
  • Events (current)
  • Resources
    Emotional Wellbeing Support Videos, Webinars, Podcast Patient Stories Living with PNH Travelling with PNH Patient safety card Rare Patient Passport Glossary Policies and Guidelines Covid-19 PNH National Service EuroBloodNet
  • Donate Now (current)

News

Medicine

Dr Austin Kulasekararaj discusses Phase 3 results of ALXN 1210

Posted on May 13, 2018

Dr Austin Kulasekararaj, consultant haematologist Kings College Hospital London, and ALXN 1210 investigator, said, “ALXN1210 could provide an effective alternative choice for treatment of both treatment-naïve PNH patients and also switching […]

Read more About Dr Austin Kulasekararaj discusses Phase 3 results of ALXN 1210
akari

Good results for the Phase 2 Coversin drug trial (daily injection)

Posted on February 9, 2018

Akari Therapeutics Announces Completion of Phase II COBALT Trial of Coversin in Patients with PNH and Further Progress of Clinical Trials The final three Paroxysmal Nocturnal Hemoglobinuria (PNH) patients enrolled […]

Read more About Good results for the Phase 2 Coversin drug trial (daily injection)
Id-Alxn-Logo-R-e1523988389132

Results from Recent Clinical Trials to be presented at the American Society of Hematology Conference in December 2017

Posted on November 4, 2017

New Phase 1/2 Study Data for ALXN1210 as a Potential Future Treatment for Patients with Paroxysmal Nocturnal Hemoglobinuria (PNH) to Be Presented at American Society of Hematology (ASH) Meeting Data […]

Read more About Results from Recent Clinical Trials to be presented at the American Society of Hematology Conference in December 2017

Ra Pharmaceuticals (RARX) Begins Dosing of RA101495 in PNH Patients

Posted on May 3, 2017

April 26, 2017 7:12 AM EDTInitial Data from Global Phase 2 Program Expected Mid-2017 CAMBRIDGE, Mass.–(BUSINESS WIRE)– Ra Pharmaceuticals, Inc. (NASDAQ: RARX) today announced that it has initiated dosing in the […]

Read more About Ra Pharmaceuticals (RARX) Begins Dosing of RA101495 in PNH Patients

APPG Report on UK Strategy for Rare Diseases in England

Posted on March 2, 2017

The All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions published a report yesterday looking at the implementation of the UK Strategy for Rare Diseases in England. The […]

Read more About APPG Report on UK Strategy for Rare Diseases in England
« Previous 1 … 6 7 8 9 Next »

Upcoming Events

Notice
There are no upcoming events.
Archives
  • July 2026
  • November 2025
  • March 2025
  • January 2025
  • December 2024
  • November 2024
  • October 2024
  • February 2024
  • November 2023
  • June 2023
  • March 2023
  • January 2023
  • November 2022
  • September 2022
  • August 2022
  • April 2022
  • March 2022
  • February 2022
  • July 2021
  • April 2021
  • July 2020
  • June 2019
  • April 2019
  • February 2019
  • January 2019
  • December 2018
  • October 2018
  • August 2018
  • July 2018
  • May 2018
  • February 2018
  • November 2017
  • May 2017
  • March 2017
  • November 2016
  • April 2016
  • September 2015
Recent Posts
  • EHA 2026 Congress: Representing the PNH Community
  • PNH Support celebrates its 10 Year Anniversary!
  • Living with PNH in your 20’s
  • Super Rare Campaign 2025
  • Join in with Super Rare 2025!

Test Parent

  • A tablet for PNH (2024)
  • A treatment which addresses extravascular haemolysis (2024)
  • Eculizumab eases the symptoms of PNH (2013)
  • IPIG PNH Registry
  • Living with an invisible condition
  • Our 5 year strategy (2025 to 2030)
  • Patients get an 8 weekly treatment for PNH (2022)
  • PNH Support Privacy Notice (July 2025)
  • PNH Support WhatsApp Group Guidelines 
  • PNH Support’s Children and Young People Safeguarding Policy 
  • PNH Support’s Safeguarding Adults Policy 
  • Policies and Guidelines
  • Rare Patient Passport
  • The gene responsible for PNH (1993)
  • The natural history of PNH (1995)
  • Victoria Solovieva
  • Virginia Bertelli
  • Zoom instructions
  • Emotional Wellbeing Support
  • Maria Piggin
  • Alex Naylor
  • Contact us
  • Research from PNH Registry
  • Review of treatment landscape
  • Newly Diagnosed Information
  • PNH Support
  • Legal
  • About PNH Support
    • Membership
    • Funding
  • News
  • Resources
    • Patient Stories
      • Pam’s story
      • India’s story
      • Tom’s story
      • Jane’s story (Northern Ireland)
      • Kirsten’s story
      • Eric’s story
    • Patient safety card
    • Living with PNH
    • Travelling with PNH
    • Pregnancy, Fertility & Menopause
    • Glossary
    • Videos, Webinars, Podcast
    • PNH National Service
    • EuroBloodNet
    • Covid-19
  • What is PNH?
    • Signs and Symptoms
    • Diagnosis
    • Current Treatments
    • Research and Clinical Trials
  • Disclaimer

Recent Comments

    Recent Posts

    • EHA 2026 Congress: Representing the PNH Community
    • PNH Support celebrates its 10 Year Anniversary!
    • Living with PNH in your 20’s
    • Super Rare Campaign 2025
    • Join in with Super Rare 2025!

    Recent Posts

    • EHA 2026 Congress: Representing the PNH Community
    • PNH Support celebrates its 10 Year Anniversary!
    • Living with PNH in your 20’s
    • Super Rare Campaign 2025
    • Join in with Super Rare 2025!

    Archives

    • July 2026
    • November 2025
    • March 2025
    • January 2025
    • December 2024
    • November 2024
    • October 2024
    • February 2024
    • November 2023
    • June 2023
    • March 2023
    • January 2023
    • November 2022
    • September 2022
    • August 2022
    • April 2022
    • March 2022
    • February 2022
    • July 2021
    • April 2021
    • July 2020
    • June 2019
    • April 2019
    • February 2019
    • January 2019
    • December 2018
    • October 2018
    • August 2018
    • July 2018
    • May 2018
    • February 2018
    • November 2017
    • May 2017
    • March 2017
    • November 2016
    • April 2016
    • September 2015

    Upcoming Events

    Notice
    There are no upcoming events.

    Latest Tweets

      Quick Links

      • About PNH Support
      • Membership
      • Resources
      • Covid-19

      Legal

      • Disclaimer
      • Legal

      Copyright ©

      PNH SUPPORT