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News

Eculizumab: another breakthrough (Journal Article)

Posted on March 1, 2017

In this issue of Blood, Harder et al demonstrate that breakthrough hemolysis in patients with paroxysmal nocturnal hemoglobinuria (PNH) treated with eculizumab is due to strong activation of the complement cascade, leading to […]

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Press Releases About Continuing Research into New Drug Therapies for PNH

Posted on November 9, 2016

Achillion slumps 33% on potential safety issue with PNH candidate ACH-4471 Read Here Interim analysis of post-marketing surveillance of eculizumab for paroxysmal nocturnal hemoglobinuria in Japan Read Here Akari Therapeutics […]

Read more About Press Releases About Continuing Research into New Drug Therapies for PNH

Tick Saliva Discovery

Posted on April 1, 2016

The discovery of how the proteins in a tick’s saliva stop a human’s immune system from running amok could be the answer to treating life-threatening blood disorders, researchers say. Read […]

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New Research into PNH and Pregnancy

Posted on September 10, 2015

The study of 75 women showed that eculizumab provided benefit for women with PNH during pregnancy, as evidenced by a high rate of fetal survival and a low rate of […]

Read more About New Research into PNH and Pregnancy
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Recent Posts
  • PNH features in Lancet Haematology
  • Launch of Super Rare Campaign – February and March 2023
  • National Community Survey of people living in the UK with bone marrow conditions
  • Introducing: The Better Together For Healthy Bone Marrow Project
  • “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” Webinar Recording

Latest Tweets

  • Ways you've got involved in SUPER RARE so far. Thank you to everyone who has joined in and supported people affected by #PNH so far. There is still time left! https://t.co/puE0mLPIAG #bettertogether #strongertogether #superrare #superrare2023 #charity #fundraising https://t.co/KYlLLB1LsM, 4 hours ago
  • Join this webinar for #patients on Wed 22 March 4.30pm to 6pm CET on #PNH and #AA and their connection @lichterzellen https://t.co/ACfNolO4Sm, March 19, 2023

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