News – Page 2 – PNH Support

Introducing: The Better Together For Healthy Bone Marrow Project

Posted on September 6, 2022

We are delighted to announce that our alliance of seven charities have secured support from The National Lottery Community Fund to build an ambitious three year project. This project is […]

“Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” Webinar Recording

Posted on August 13, 2022

For those who missed the EuroBloodNet webinar held on 5 July 2022 on “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” the recording is now […]

Commentary piece published on Biosimilar drugs in HemaSphere journal by Chair of PNH Support

Posted on April 19, 2022

The Chair of PNH Support, Maria Piggin has authored a commentary piece in the April 2022 edition of he scientific journal HemaSphere entitled “Addressing Inequality of Access to Biologics: What […]

MHRA provides Marketing Authorisation for Pegcetacoplan (Aspaveli)

Posted on March 21, 2022

Following a Great Britain Marketing Authorisation being provided by the Medicines Healthcare Regulatory Authority (MHRA) for Pegcetacoplan (Aspaveli), NICE published its Final Guidance on Pegcetacoplan for treating PNH on 9 March 2022. […]

NICE recommends Pegcetacoplan (Aspaveli)

Posted on February 2, 2022

On 8 December 2021, NICE published the Final Appraisal Decision (FAD) which recommends pegcetacoplan as an option for treating adults with PNH in England and Wales who are anaemic after […]