We are currently running the first ever National Community Survey of people living in the UK with bone marrow conditions, or caring for those with rare bone marrow conditions including […]
We are delighted to announce that our alliance of seven charities have secured support from The National Lottery Community Fund to build an ambitious three year project. This project is […]
For those who missed the EuroBloodNet webinar held on 5 July 2022 on “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” the recording is now […]
The Chair of PNH Support, Maria Piggin has authored a commentary piece in the April 2022 edition of he scientific journal HemaSphere entitled “Addressing Inequality of Access to Biologics: What […]
Following a Great Britain Marketing Authorisation being provided by the Medicines Healthcare Regulatory Authority (MHRA) for Pegcetacoplan (Aspaveli), NICE published its Final Guidance on Pegcetacoplan for treating PNH on 9 March 2022. […]
