On Rare Disease Day 2023, the Lancet Haematology journal published a patient voice piece written by Maria Piggin, Chair of PNH Support and PNH Global Alliance entitled “Nothing about us […]
People living with PNH need our help more than ever. With increasing pressures in our health service, and a cost of living crisis – it is too easy for the […]
We are currently running the first ever National Community Survey of people living in the UK with bone marrow conditions, or caring for those with rare bone marrow conditions including […]
We are delighted to announce that our alliance of seven charities have secured support from The National Lottery Community Fund to build an ambitious three year project. This project is […]
For those who missed the EuroBloodNet webinar held on 5 July 2022 on “Risk and Course of COVID-19 in AA and PNH Patients, including Vaccination Strategies” the recording is now […]
