The PNH Global Alliance is pleased to present their new website! The PNH Global Alliance was formed in December 2018 and comprises PNH patient organisations from the following countries: Germany, […]
A recent article in the prestigious journal ′”New England Journal of Medicine” published the findings of the phase 3 study of a C3 inhibitor (pegcetacoplan or APL2), intended to be […]
Dear PNH community living in the UK, We need your help! As some of you may be aware, the National Institute for Health and Care Excellence (NICE) is currently appraising […]
A group of rare disease charities specialising in acquired and inherited rare bone marrow failures have come together to form a collaborative alliance – Together for Heathy Marrow. The charities […]
