On 8 December 2021, NICE published the Final Appraisal Decision (FAD) which recommends pegcetacoplan as an option for treating adults with PNH in England and Wales who are anaemic after […]
We are delighted that NICE recommended Ravulizumab “as an option for treating paroxysmal nocturnal haemoglobinuria in adults: • with haemolysis with clinical symptoms suggesting high disease activity, or • whose […]
The PNH Global Alliance is pleased to present their new website! The PNH Global Alliance was formed in December 2018 and comprises PNH patient organisations from the following countries: Germany, […]
A recent article in the prestigious journal ′”New England Journal of Medicine” published the findings of the phase 3 study of a C3 inhibitor (pegcetacoplan or APL2), intended to be […]
Dear PNH community living in the UK, We need your help! As some of you may be aware, the National Institute for Health and Care Excellence (NICE) is currently appraising […]
