The Chair of PNH Support, Maria Piggin has authored a commentary piece in the April 2022 edition of he scientific journal HemaSphere entitled “Addressing Inequality of Access to Biologics: What […]
Following a Great Britain Marketing Authorisation being provided by the Medicines Healthcare Regulatory Authority (MHRA) for Pegcetacoplan (Aspaveli), NICE published its Final Guidance on Pegcetacoplan for treating PNH on 9 March 2022. […]
On 8 December 2021, NICE published the Final Appraisal Decision (FAD) which recommends pegcetacoplan as an option for treating adults with PNH in England and Wales who are anaemic after […]
We are delighted that NICE recommended Ravulizumab “as an option for treating paroxysmal nocturnal haemoglobinuria in adults: • with haemolysis with clinical symptoms suggesting high disease activity, or • whose […]
The PNH Global Alliance is pleased to present their new website! The PNH Global Alliance was formed in December 2018 and comprises PNH patient organisations from the following countries: Germany, […]
