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News

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Pegcetacoplan Clinical Trial (Phase 3) Results Published

Posted on April 8, 2021

A recent article in the prestigious journal ′”New England Journal of Medicine” published the findings of the phase 3 study of a C3 inhibitor (pegcetacoplan or APL2), intended to be […]

Read more About Pegcetacoplan Clinical Trial (Phase 3) Results Published
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Survey for PNH Patients and Carers/Family Members for NICE Appraisal – closes 21 August 2020

Posted on July 28, 2020

Dear PNH community living in the UK, We need your help! As some of you may be aware, the National Institute for Health and Care Excellence (NICE) is currently appraising […]

Read more About Survey for PNH Patients and Carers/Family Members for NICE Appraisal – closes 21 August 2020
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PNH Support in Open Access Government Journal

Posted on June 26, 2019

Maria Piggin, Chair of PNH Support talks about the importance of collaboration and education in the Open Access Government Journal

Read more About PNH Support in Open Access Government Journal
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PNH Support joins Alliance with UK Bone Marrow Failure Patient Organisations

Posted on April 14, 2019

A group of rare disease charities specialising in acquired and inherited rare bone marrow failures have come together to form a collaborative alliance – Together for Heathy Marrow. The charities […]

Read more About PNH Support joins Alliance with UK Bone Marrow Failure Patient Organisations

World’s first Soliris biosimilar launched in Russia

Posted on April 14, 2019

by Dan StantonThursday, April 11, 2019  12:04 pm Russian biopharma Generium has launched Elizaria, a biosimilar version of Alexion’s Soliris (eculizumab) developed using the SUREtechnology Platform from Selexis. Approved for the treatment of […]

Read more About World’s first Soliris biosimilar launched in Russia
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